The Global Albinism Alliance held the International Scientific Conference on Albinism (ISCA) 2025 from January 21 to 24, an online conference open to registered participants from 40 countries.
Our Founder Trustee, Dr. Prabha Choksey, presented her paper, “Children Living with Albinism in Africa: A Kenyan Perspective.” She highlighted the major role ophthalmologists play in the lives of persons with albinism:
- Demystifying myths. As medical practitioners, ophthalmologists can dispel the myths and legends associated with the condition.
- Diagnosis at birth. The involvement of the eyes is what distinguishes a child with albinism, and early diagnosis is crucial for the child’s survival and for keeping families together.
- Managing visual impairment. The real disability in albinism is related to the eyes, and the right care changes lives.
- Guidelines for education. With prescription photochromatic glasses, large-type text, and high-contrast materials, children with albinism can study in regular schools.
- Genetic counselling. Albinism is an autosomal recessive condition: a child inherits the gene from both parents, who usually have normal pigment themselves.
- Early detection of skin cancer. Skin with albinism is extremely sensitive to ultraviolet light, and prolonged sun exposure can lead to skin cancer, usually on the head and neck.
Join us in helping children with albinism unlock their potential and achieve their dreams.
